文章摘要
王晨霁,杨 芳,罗桂英.全面“二孩”背景下我国遗传咨询服务法治保障探微[J].南京医科大学学报(社会科学版),2020,(5):418~424
全面“二孩”背景下我国遗传咨询服务法治保障探微
A legal safeguard probe into the genetic counseling services under the background of comprehensive “two children” policy in China
投稿时间:2020-01-06  
DOI:10.7655/NYDXBSS20200505
中文关键词: 遗传咨询  主体权利  行业规范  法治保障微探
英文关键词: genetic counseling  subject right  industry norm  legal safeguard probe
基金项目:安徽省高等学校人文社会科学研究重大项目“人类基因编辑技术的伦理调控与法律规制研究”(SK2017ZD13);安徽省高等学校人文社会科学研究重点项目“遗传咨询中的伦理与法律问题研究”(SK2018A0166)
作者单位
王晨霁 安徽医科大学医学人文研究中心 安徽 合肥 230032 
杨 芳 安徽医科大学医学人文研究中心 安徽 合肥 230032 
罗桂英 安徽医科大学第一附属医院生殖医学中心 安徽 合肥 230032 
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中文摘要:
      随着2016年我国“二孩”政策的正式实施,生育权逐步开放,越来越多的高龄夫妇希望借助现代医学技术的帮助生育出健康的下一代。而我国负责解读现代基因检测结果和疾病之间关系的遗传咨询行业却起步迟,发展慢,至今既没有国家机关层面认证的遗传咨询师职业,也没有全国统一标准的遗传咨询培训及分类服务体系,这极易导致各方主体在对应的医疗服务中出现合同纠纷甚至侵权现象。文章从遗传咨询的现状和存在的问题入手,对我国遗传咨询服务的主体权利、行业规范、咨询模式等进行法律层面思考,以期为国家“十三五”科技创新专项规划中将有大量精准医学用于人口健康领域的未来做法治保障方面的微探。
英文摘要:
      With the official implementation of “two?child” policy in China in 2016 and the gradual opening of reproductive rights, more and more elderly couples hope to have a healthy next generation with the help of modern medical technology. However, the genetic counseling industry in China, which is responsible for interpreting the relationship between modern genetic testing results and diseases, has got a late start and a low developing rate. So far, there is neither the genetic counselor occupation certified by the organs of state, nor a national unified standard genetic counseling training and classification service system,which easily leading to contract disputes and even infringements in the corresponding medical services. In this paper,based on the present status and existing problems, we intend to discuss the subject rights, industry norms and counseling models of genetic counseling services in China from rule?of?law aspect, in order to perform a legal probe into the future described by the national 13th Five?Year Plan for Science and Technology Innovation,where numerous precision medicine would be used in the field of population health.
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