全面“二孩”背景下我国遗传咨询服务的法治探微
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安徽医科大学医学人文研究中心

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2017年度安徽省高等学校人文社会科学研究重大项目《人类基因编辑技术的伦理调控与法律规制研究》(SK2017ZD13),2018年度安徽省高等学校人文社会科学研究重点项目《遗传咨询中的伦理与法律问题研究》(SK2018A0166)


A Legal Probe into the Genetic Counseling Services under the Background of Comprehensive
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Medical Humanities Research Center of Anhui Medical University

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    摘要:

    随着2016年我国“二孩”政策的正式实施,生育权逐步开放,越来越多的高龄夫妇希望借助现代医学技术的帮助生育出健康的下一代。而我国负责解读现代基因检测结果和疾病之间关系的遗传咨询行业却起步迟,发展缓,至今既没有国家机关层面认证的遗传咨询师职业,也没有全国统一标准的遗传咨询培训及分类服务体系,这极易导致各方主体在对应的医疗服务中出现合同纠纷甚至侵权现象。本文拟从遗传咨询的现状和存在的问题入手,对我国遗传咨询服务的主体权利、行业规范、咨询模式等进行法律层面思考,以期为国家“十三五”科技创新专项规划中将有大量精准医学用于人口健康领域的未来做法治微探。

    Abstract:

    With the official implementation of "two-children in China from 2016, the reproductive rights have been gradually released, and more and more senior couples hope to give birth to a healthy next generation with the aid of modern medical technology. However, the genetic counseling industry in China, which is responsible for interpreting the relationship between modern genetic testing results and diseases, has got a late start and a low developing rate. So far, there is no genetic counselor occupation certified by the organs of state, nor is there a national unified standard genetic counseling training and classification service system,thus easily leading to contract disputes and even infringements in the corresponding medical services. In this paper,based on the present status and existing problems, we intend to discuss the subject rights, industry norms and counseling models of genetic counseling services in China from rule-of-law aspect, in order to perform a legal probe into the future described by the national 13th Five-Year Plan for Science and Technology Innovation,where numerous precision medicine will be used in the field of population health.

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  • 收稿日期:2020-01-06
  • 最后修改日期:2020-03-30
  • 录用日期:2020-10-20
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