The Affiliated BenQ Hospital of Nanjing Medical University
目的 本研究通过调查南京市部分老年期痴呆患者照护者的现状，评估其照护负担；分析原因并找出其影响因素；为减轻照护负担提供依据，从而提升双方生活质量。方法 以市内就诊的老年期痴呆患者的照护者为研究对象，采用问卷调查的方式进行研究；运用秩和检验、方差分析等方法对数据进行统计分析，探讨影响照护负担的因素。结果 (1)照护者负担量表(Caregiver Burden Inventory，简称CBI)总均分为44.33±20.13，各因子分均值在5.8-20.13之间，得分最高的为情感性负担(12.13±4.84)。(2)照护者的基础疾病状况、家庭月收入、家庭有无保姆或护工、医疗费用、被歧视情况等具有统计学意义(P＜0.05)。(3)患者的疾病病程、宗教信仰、患有其他基础疾病状况、受教育程度、患者的生活及医疗费用支出等具有统计学意义(P＜0.05)。（4）多因素比较结果显示照护者是否收到歧视、照护者自身基础疾病状况、患者医疗费用、宗教信仰等是造成照护负担的主要因素。结论 照护者的负担主要是情感性负担，患者病程与照护者的照护负担呈正相关，照护负担也将对照护者的身体健康状况产生影响；患者医疗费用的增加是影响照护负担得分的重要因素。 关键词：老年期痴呆患者；照护者；照护负担；影响因素
Objective: We investigated the care burden of some caregivers of senile dementia patients in Nanjing to evaluate the current situation and analyze the main reasons and influencing factors, in order to reduce the care burden of caregivers and improve the life quality of both caregivers and patients. Methods: We collected the caregivers from Nanjing using the questionnaire survey. Statistical description, rank-sum test and variance analysis were performed on the data, and the relevant data were summarized to explore the relevant data were summarized to explore the influence of the care burden. Results: (1) In our study, the average CBI of the caregivers of Alzheimer"s patients was 44.33±20.13, with the mean score of each factor ranging from 5.8 to 20.13. The highest score was affective burden (12.13±4.84). (2) It was found that there was statistical significance in basic diseases, monthly family income, available of other caregivers, medical cost and discrimination (P < 0.05). (3) We found that the course of disease, other basic diseases, religion, education level, patients" life and medical expenses had statistical significance on the score of care burden of caregivers (P < 0.05). (4) The results of multivariate analysis showed that the main reasons of the care burden were discrimination, the caregivers" underlying disease status, medical cost and religion. Conclusion: The major care burden of the caregivers of Alzheimer"s patients is emotional burden. Moreover, the longer the course of disease, the more likely it is to aggravate the care burden of caregivers through the increase of care time and the length of daily care. In addition, caregivers are generally suffering from underlying diseases leading to their own poor health. The increase of patients" medical expenses has an obvious effect on the increase of care burden.